(???? 2018? 4? 18? PRNewswire=????) ???? ???? ??? ????? ???(LSE: SHP, NASDAQ: SHPG)? ?? ???? ?()? ?? ??? ??? ?? ? ??? ??? ???? ?? ???? ???? ?? ?? ??? ???? ?? ??? ??? ?????. ?? ?? ???? ?? "?? ??? ??? ? ??? ??(Sharing Knowledge Makes Us Stronger)"?? ??? ????, ???? ?? ???? ? ???? ?? ??? ?? ???? ??? ???? ??.
????? ?? ????: //www.nyhomeapp.cn/mnr/whd_2018.shtml
??? ???? ??? ??? ??? ???(Red Dot Design Museum)?? ??? ???? ??? ??? ????, ??, ??? ??? ??? ???(Asia-Pacific Haemophilia Working Group, APHWG) ?? ??? ??? 3?? ?? ??? ??(Gallery Walk)? ????. ? ????? ?? ?? ? ?? ??? ????, ??? ??? ???? ??? ?? ??? ????? ? ??? ???.
??? ??? ??? ?? Peter Fang? "???? ?? 70? ? ? ???????, ????? ? ???? ??? ? ?? ?????. ??? ?? ???? ??? ?? ???? ???? ?? ??? ?? ??? ????? ??. ??? ?????? ? ?? ??? ??? ????, ?? ??? ????? ??? ?? ???? ??"? ??.
??? ????? ?? ?? ?? ?? ?? ??
2018? 2? ????? ??? ??? "??? ?? ??: ??? ??? ?? ??(Principles of haemophilia care: The Asia-Pacific perspective) [ ]"??? ??, ?? ? ?? ?????? ??, ??? ????, ?? ?? ??? ??, ???? ??, ???? ??, ??? ??, ??? ?? ?? ????? ? 12?? ?? ?? ??? ?? ???? ??.
??????? ??????(European Association for Haemophilia and Associated Disorders, EAHAD)? ??????(World Federation of Hemophilia, WFH)?? ??? ?? ??? ????, ?????? ?? ? ????? ? ??? ???? ??? ???? ???? ??? ?? ??? ?????. ??? ??? ??? ??? ??? 50%? ????? ? ?? ? ??? ?? ? 75%? ??? ???? ???? ??? ??? ?? ??? ??[1].
?? ???? ???????? ???? ??? Dr. Alok Srivastava? "APHWG? ??? ??? ?? ? ??? ?? ?? ??? ??? ?? ??? ?????"?? "???? ???? ?? ??? ????, ??? ??? ?? ? ??, ?? ???, ?? ?? ? ??? ??? ?????. ??? ??? ?????? ??? ? ?? ??? ???? ????? ???? ??, ????, ?? ? ??? ?? ??? ??? ????? ?? "? ???.
?? ???? ?? ??? ???? ?? ?? ??? ??? Dr. Scott Dunkley? ??? ??? ????. ?? "??? ?? ?? ??? ??? ?? ??? ?? ????? ?? ?? ??? ?? ?? ??? ??? ??? ??"?? "??? ??? ???? ????(prophylaxis ?? ????) ??? ????? ?? ???? ?? ???? ??? ? ? ?? ???? ?? ??? ??? ? ?? ???. ?????? ????? ???? ??? ? ?? ???? ?? ?? ???? ?????"? ???. Dunkley ??? ?? "??? ??? ??? ??? ????? ????? ??? ??? ??? ?? ??? ?? ??? ??? ??? ?? ??(??? ?? ??)? ??? ??"?? "??? ??? ?? ??? ?? ? ??? ??? ?? ????, ?? ?? ??? ???? ????? ??? ??? ???? ????? ???? ???? ?? ??? ??? ????? ?? ??? ??. ? ?? ??? ?? ????? ?? ??? ??? ?? ??? ????? ???"? ???.
???? ???? ??? ?????? ??? ?? ??? ???? ?? ??? ???? ??? ??? ??? ?? ??. ???? ?????? ????? ??, ?????? ? ?? ?? ???? ???? ??? ???? ??? ? ??? ???? ??. ??, ???? ???? ??? ??? ? ??? ?? ?? ????? ????, ???? ??? ????, ?? ?? ????? ???? ??.
??? ???? ??? ??? ?? Dr Timothy Low? "????? 9?? ???? ??? ?? 10?? ??? ??? ???? ?????? ??"?? "??? 1939? ??? ?? ???? ?? ??? ????[3], ??? ?? ?? ?? ??? ???? ?? ????? ?? ????? ????? ??? ??? ???? ??"?? ???.
??? ??? ??(Light It Up Red)
???? ??? ??? ??? ?? ??? ??? ?? 4? 17? ??? ?? ???? ?? ???? ??.
- ??? ?? ??? ???? PK ??? ???? 'Pharmacokinetics (PK) Xplained'? ???? ?? Medicines X? ???? ??. ?? ?? ???(Pharmacokinetics, PK)?? ??? ??? ????? ?? ????? ?? ???? ??? ???? ??? ??? ???? ?? ???? ??? ???. ??, ?? ???? ???? ???? ??? ?? ???? ???? ?? ??? ?? ??? ??? ? ??? ??.
- ??? ?? ??? ?? ? ? ??(Lunch and Learn Event)?? 'Tied in Red' ???? ?? ???? ??? ?? ??? ???. ???? ? ? ?? ??? ???? ???? ?? ??? ??? ????? ???? ???? ????, ??? ???? ??? ?? ???? ?? ??? ?????. ??? ??? ?? ????? ?? ????.
- ??? ????? ??? ?? MPH ???? ?? ??? Miao&Wafupafu? ????? ??? ??? ?? ??? '??? ???? ??(Hemophilia Mythbusters)'?? ??? ??? ??? ??? ???? ??. ??? ??????? ?? ????.
- ??? ?? ??? ?????????(National Health Security Office, NHSO) ? ??????(National Hemophilia Foundation of Thailand, NHFT)? ?? Ramathibodi ??? Phramongkutklao ???? ?? ???(Zero Bleeds)' ?? ?? ????. ?? ??? ?? ??? ??? ??? ?? ? ??? ???? ???? ????? ??? ?? ??? ?????.
- ??? ??? ??? ????? 3? 25??? Blood and Transfusion Hematology ??, 4? 14??? Thu Duc ?????? ??????? ????.
?????
???? ?? ? ???? ???? ?? ???? ? ??? ???? ?? ??????.[5],[6] ????? 18? ? ??? ???? ?? ?? ??? ????.[7] ?? ???? ??? ??? A? ???? VIII(FVIII) ???? ?? ????, ??? B? ???? IX(FIX)? ???? ????.[8],[9] ???? ???? ?? ?? ???? ??? ????, ??? ???? ???? ??? ????.[10] ??? A ??? ?? ??? ?? ????. ??? ?? ? 75%? ??? ???? ???? ??? ??? ?? ??? ??.[11]
???:
Sung Lee
sung.
+65-8799-0365
??
| [1] |
National Hemophilia Foundation. Fast facts. 2017. Available at //www.hemophilia.org/About-Us/Fast-Facts. |
| [2] |
Shire. List of Shire Products. Available at: //www.shire.com/products/product-list?t=%7bf4f1d259-99fc-4798-9fac-52e3e8706baa%7d. |
| [3] |
Wortham S, et al. Microaggregate Removal, and Leukocyte Reduction. Pall Medical. 2003. Jul;17(3):216-22. |
| [4] |
Shire global newsroom. //www.shire.com/en/newsroom/2017/december/abhvp5. |
| [5] |
Orphanet. Rare disease registries in Europe. Orphanet Report Series: Rare Disease Collection, May 2017. Available at: //www.orpha.net/orphacom/cahiers/docs/GB/Registries.pdf |
| [6] |
World Federation of Hemophilia. What is hemophilia? Available at: //www.wfh.org/en/page.aspx?pid=646. |
| [7] |
World Federation of Hemophilia. Annual Global Survey 2016. October 2017. Available at: //www1.wfh.org/publications/files/pdf-1690.pdf |
| [8] |
EMedicine Medscape. Hemophilia A, updated May 2, 2017. Available at: //emedicine.medscape.com/article/779322-overview |
| [9] |
Patient.info. Haemophilia B (Factor IX Deficiency). 3 July 2014. Available at: //patient.info/doctor/haemophilia-b-factor-ix-deficiency |
| [10] |
National Hemophilia Foundation. Hemophilia A. Available at: //www.hemophilia.org/Bleeding-Disorders/Types-of-Bleeding-Disorders/Hemophilia-A |
| [11] |
National Hemophilia Foundation. Fast facts. 2017. Available at: //www.hemophilia.org/About-Us/Fast-Facts |
?? - //cdn4.nyhomeapp.cn/002071/mnr/201804/whd/video.mp4
?? - //photos.nyhomeapp.cn/prnh/20180412/2103640-1-a
?? - //photos.nyhomeapp.cn/prnh/20180412/2103640-1-b
?? - //photos.nyhomeapp.cn/prnh/20180412/2103640-1-c
?? - //photos.nyhomeapp.cn/prnh/20180412/2103640-1-d
